tag:blogger.com,1999:blog-50731612940167331382011-08-15T13:58:36.571-04:00Donnanoreply@blogger.comBlogger621100tag:blogger.com,1999:blog-5073161294016733138.post-31832833871171068022010-11-17T09:46:00.003-05:002010-11-17T10:05:04.793-05:00

My school conference was last night and everyone came home bursting with joy. Not only am I doing well in first grade, but the teacher tattled and told them about my boyfriend Garrett. Yes, I have a boyfriend. Garrett and I were in kindergarten together and we're lucky enough to both be in Mrs. Dalton's first grade classroom together this year. He sits right beside me and recently when our

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-41461873395105036422010-10-27T07:43:00.002-04:002010-10-27T08:10:23.161-04:00

First off, I hope this finds all my angel friends and school friends healthy and having a great start to the school year.I am now a first grader at Lodi Primary School. I have kept some old friends and made tons of new friends this year. How great it is to be a part of the inclusion process and to have such a support system in place.My SLP Andrea is really coming up with some wonderful ideas for

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-69954473729262206472010-05-13T17:10:00.005-04:002010-05-13T18:05:40.263-04:00

Make an on-line slideshow at www.OneTrueMedia.comJust a short intro I prepared last year for Miss Emma's kindergarten classroom. When your battling for acceptance you try whatever you can to get the message across that she too is just a little girl. Don't label her because she is different but rather see what we see....a little girl trapped in silence trying to be just another little girl. Nana

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-26885147244879163602009-09-14T07:43:00.006-04:002009-09-14T07:50:44.962-04:00

Well it looks like my SLP is ready to work with me on making my own choices! I am so excited I could just burst. Nana sent in 4 of my favorite snacks for her to use. Here they are....woo hoo! I am going to get to pick rather than be given what others think I want. At nana's house she picks out several of these items and which ever one I see most excited about is the one she gives me. I like

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-88135073678785878502009-09-04T08:54:00.004-04:002009-09-04T09:17:38.162-04:00

Hi everyone! Been quite some time since I have been able to sit down with Nana Donna and bring everyone up to date on what I have been doing.I had a great summer. Waterparks, Cedar Pointe, jumping on my trampoline, swinging and visiting Camp Paradise where nana worked as camp nurse this summer. I had a blast but am now ready to get back to school.I just started kindergarten on Aug. 31st at Lodi

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-66262157473105478812009-02-15T08:48:00.002-05:002009-02-15T08:59:14.955-05:00

Well as many know I had a bout with not being able to go poo poo but all is fine now and I am back to going regularly. This was the first time in a long time that this has happened to me but boy was I having trouble! I had to go over to Akron Children's Hospital for a wee bit of assistance this time. They were all too kind to me. :-) Daddy of course never left my side for a minute. He IS such a

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-91986446211064552822009-01-21T20:40:00.002-05:002009-01-21T20:55:03.995-05:00

Well as you know I am now going to public school just like my big sister Tori. And it rocks! Daddy is so proud of me as today Mrs. Maloney sent home a note telling him that during story time while she was reading to our class about a penguin family, when she mentioned the daddy penguin I began saying "Da-Da" too! Hey, what can I say. When you mention my main man daddy, I simply cannot keep to

Donnanoreply@blogger.com3tag:blogger.com,1999:blog-5073161294016733138.post-837299394095222652009-01-17T09:30:00.002-05:002009-01-17T10:59:00.270-05:00

Well I am officially in inclusion classes at Lodi Elementary. Yep! You are reading this correctly. What a wonderful group of people at this school. Mrs. Maloney is my teacher in pre-K, Heather is my personal aide (to keep me out of mischief) and Mrs. Licursi my resource room teacher. And here is the best part of it all. Besides the fact that they are all amazed at my receptive skills and that I

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-75780964207128273592009-01-06T18:22:00.009-05:002009-01-06T18:41:07.902-05:00

Here are just a few pictures of me New Year's Eve and New Year's Day. You will love Mikayla and my venture of doing cut-out cookies. I liked eating the icing far more than putting it on the cookies we made. Grandma laughed at Mikayla for not watching where my hands were going...if you snooze you lose when it comes to my speedy movements. I am good..... LOL

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-81054330720540795552009-01-05T20:41:00.005-05:002009-01-05T21:36:07.782-05:00

Well for starters let me wish everyone a Happy New Year! Can you believe its 2009? My how 2008 has flown by the past few months. It seems like since grandma & papa moved into their new house and moved daddy, Tori & I into their other house no one has had time for anything! Geesh! I had no idea how busy our lives would become but that is precisely what has happened. So....my hope is for grandma

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-3141924390009888402008-10-15T05:57:00.003-04:002008-10-15T06:09:35.846-04:00

So much has happened since July. Grandma & Papa moved into their new house and daddy, Tori and I moved into ours. :-)I now have about 1.5 acres of yard to roam. Woo hoo! And got a playhouse and little Tykes swing set, slide and tree house in the deal. Thanks Grandma and Papa!!!! Tori and I love our backyard.Well, we all know school has so Tori and I are both in a new district now. Tori loves her

Donnanoreply@blogger.com2tag:blogger.com,1999:blog-5073161294016733138.post-7883564799764040852008-07-23T07:51:00.003-04:002008-07-23T08:40:56.430-04:00

Hi everybody!I have been a busy girl this summer. Swimming, summer school, Corn Festival and picnics and shopping a bit to name just a few of the many things I have been up to. Oh yeah, bouncing and jumping on my trampoline too! That is definitely been a hoot. I have even started standing up on it to bounce, but only when by myself as Tori is far better at this and if she and I are on at the same

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-67533943144358970052008-07-17T08:44:00.003-04:002008-07-17T09:22:17.511-04:00

Sunday, July 13th was my 5th birthday. My how time flies when your an angel having fun day in and day out.We had a wee party with my favorite people. Daddy, Tori, Niki, Savannah, Halle, Jordyn, Mikayla, Aunt Nicki and Abigail, Papa and Grandma and of course me! :-) Such lovely gifts and love were shared by all.I will post the link to my montage/video so you too can share my day, but the best is

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-16568258621534755482008-07-06T03:00:00.002-04:002008-07-06T03:44:31.228-04:00

First off Grandma went in search of shoes (high tops) that were girly, but yet ones I would "not" take off constantly. She finally found them and they are way too cute! I will debut them on Monday as this is my first day of Summer School classes. Yes, I am going to Summer School! We are going to focus on my socialization skills so that I will play more with my peers as opposed to on my own. If

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-39547213802600433942008-06-15T20:37:00.002-04:002008-06-15T20:39:50.362-04:00

For Father's Day daddy went golfing then took us to a picnic with lots of friends and a swimming pool. Tori was a bit scared but not me! I was as happy as any angel could be floating about in the water. Whoa....how I love the water!Here is a short montage of our water fun! Enjoy!Father's Day with my Daddy

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-47053698223041275522008-06-14T13:22:00.004-04:002008-06-16T20:58:13.078-04:00

Meeting my first Angel FriendsYou know,just when we think life is good enough it seems to just get even better. My grandma (who I now call na-na-na)met some wonderful families of angels like me a couple months ago. Yep! I am not alone in Ohio. There are more angels than we knew about.Anyway, we were invited to a picnic where I met other angels like "me" for the first time face to face. How cool

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-60427182445920412422008-05-30T20:00:00.009-04:002008-06-01T21:17:42.964-04:00

Hi everybody! Been a busy week for me and my big sister Tori. We are coming to the end of our school year so lots of fun with our field day activities. We both have been sharing our school events with each other nightly over dinner. Too cool....It has been 3 weeks now since I started going potty at school and I have been successful every single day! How is that for a beginner? Don't misunderstand

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-70811096016061481092008-05-23T20:40:00.003-04:002008-05-23T21:21:38.601-04:00

So much to share with you.......I am not sure where to begin.I am going potty at school these days! Yep! You are reading it correctly. I have been going potty everyday for 2 whole weeks at school. I still have an occasional accident at home, but for the most part I am doing really good. How is that for a surprise?I am also drinking from straw cups regularly now and always eat with a fork and

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-47171755585184817992008-05-19T00:13:00.005-04:002008-05-19T05:58:16.250-04:00

Miss Emma on TrampolineGreat weekend at my house! Papa and I played on the trampoline! There were times I got to laughing and giggling so hard at Papa that I could not stay on my feet. He can be so funny at times.This was our pamper the girls weekend too! Daddy took Tori and I to the salon for haircuts. I got my bangs and top of my hair textured. Whatever that means? It was one of grandma's ideas

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-20575866578222235422008-05-12T20:02:00.001-04:002008-05-12T20:03:41.095-04:00

Tori's Kindergarten year 2007-08

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-25836277321982651252008-05-09T23:48:00.004-04:002008-05-10T00:06:19.855-04:00

Hi everybody! We had a tea party today at school and Miss Cathy invited Grandma to come with me. What a wonderful time for all. It was a wonderful way to honor Mothers Day for all the "mommy's" or in my case "grandma." I want to wish all the Angel Mommy's and Grandmothers a very Happy Mother's Day from me to you. xoxoxoxo

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-48412904757038741402008-05-04T23:11:00.006-04:002008-05-10T00:08:36.394-04:00

Grandma was so disappointed that I wasn't calling her nana yet...so this morning when Daddy took us to pick up Tori I said na-na twice! She heard it the first time and said she did not just say nana did she? Everyone nodded yes! Then I sat there loving on her and said it a second time. Ha Ha! Now she is feeling pretty darn special with this said and who knows what will come next? I said ma-ma too

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-58600320789480492008-05-02T19:58:00.006-04:002008-05-04T23:11:39.210-04:00

Well its been a long couple of weeks. First we had to prepare for my IEP meeting and that was not easy. Much to do to get ready for next school year. The IEP meeting went well but long. I went too but no one planned on me being there for 3 hours plus! Grandma and daddy said I don't have to go next year if I don't want to. :-)It was decided that I will keep my 1:1 aide for various reasons; safety

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-75709412701326461082008-04-25T22:28:00.003-04:002008-05-02T20:55:41.531-04:00

IEP week has come and gone and all is well. Grandma and daddy worried themselves for nothing. My teacher Miss Cathy gets me too! She sees that I understand what everyone is saying to me and that I do respond to directives. How cool is that? I will post later this week and fill everyone in on things...grandma and I have a full week ahead of us right now so this has to be short and sweet. (Like me).

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-81686807671791376772008-04-20T22:03:00.004-04:002008-04-20T22:08:26.140-04:00

Hi Everybody! Grandma prepared a "map for success" powerpoint to share with my school during my upcoming IEP meeting. Below is a link that should take you there to see it.Wish us luck...as with so many others I too have dreams for the best education available. :-)http://docs.google.com/Presentation?id=dhb3tp3x_0c9c3g3h5

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-4886590472384186732008-04-15T05:35:00.004-04:002008-04-20T20:49:23.320-04:00

Well if it is not enough for me to be such a busy little angel, now grandma too is running about helping care for a dear friend of hers. I think she and I have that in common, like to be busy and running about. :-)Spring break was nice, but I was ready to go back to school. Lots for me to learn as of yet and I don't want to fall behind on things that I have accomplished. My IEP meeting is coming

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-77727547827243621032008-03-30T22:12:00.004-04:002008-04-02T06:06:36.910-04:00

Well it was Spring Break for this angel and Aunt J my new daycare provider found me to be quite a treat. :-) My sister showed me how to topple the dining chairs over and Aunt J being of the artistic nature quickly found a way to tie them together with ribbon so I could not continue to topple them! I just love that woman and so does my family. She IS a Godsend to me and Tori. And we all thank

Donnanoreply@blogger.com2tag:blogger.com,1999:blog-5073161294016733138.post-87715819702637244072008-03-17T00:26:00.002-04:002008-03-17T00:37:27.675-04:00

This past weekend my big sister Tori finally got to have her birthday sleepover with our cousin Olivia. It was suppose to happen last weekend but we got hit with a big snow storm and it had to be canceled. But for those that live in Ohio, we all know if you stick around long enough the weather will change . LOL And it did.The best part of the canceling of the sleep over birthday celebration was

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-18280394993072151582008-03-11T22:17:00.005-04:002008-03-13T20:58:39.482-04:00

Congrats to my classmate Jordie. She has finally been given a diagnosis and she is more rare than we angels. She has CFD (Cerebral folate deficiency) which is an extremely rare disorder and her parents are celebrating finally having a name to her syndrome. Strange as it may sound to some we know what it was like not knowing for 4 years precisely what my diagnosis was and how thrilled my family

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-53216957125997687012008-03-07T22:52:00.011-05:002008-03-09T18:00:06.288-04:00

Hi everybody! If its not enough for my grandma to get all excited about my recent milestones, check out the pictures below. My Pre-K teacher Miss Cathy is taking pictures of me at school too! She snapped a few shots of me while I was busy at our classroom work station. Don't I look studious? LOLI am putting a 4-piece puzzle together in the first picture, then picking up pennies and placing them

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-35561481552379990652008-03-06T06:50:00.006-05:002008-03-08T07:37:12.908-05:00

Well once again grandma thinks I have mastered the world. Who am I to tell her differently? She brought me erasable markers Saturday and a little book to write in thinking I might draw for her. Silly grandma, I was far more interested in the marker itself. Adults want us to do one thing and as usual we angels want to do our own thing!Well, lo and behold....though I wasn't overly interested in

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-88742543610693434052008-03-05T18:43:00.008-05:002008-03-08T07:38:03.895-05:00

Hi Everyone! Grandma wanted to show all of you how well I am doing eating on my own. I am not sure what the big deal is but she certainly is proud so bear with her on this. She really does work hard with me so when I do something well she likes to video it to show all our family and friends.If you listen carefully you will hear me say "goo grl" for good girl. That is what grandma always calls me

Donnanoreply@blogger.com2tag:blogger.com,1999:blog-5073161294016733138.post-58401881308698144412008-02-25T23:41:00.003-05:002008-03-08T07:38:37.290-05:00

Grandma got a lovely email for Miss Cathy, my teacher. It appears she told her how I am putting a puzzle together correctly, placing pennies in a bank all by myself and learning to stack cubes! The email has grandma flying high tonight!I even drank from a straw 3 times last week! Look out world, Miss Emma is on the move in more ways than you can imagine. And more yet to follow. :-)

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-53429603381097672732008-02-24T19:50:00.004-05:002008-03-08T16:31:26.780-05:00

Hi everyone! I do not know where to begin reminiscing of my week first. I guess I will start with Tuesday's visit to the neurologist. We chose to see one affiliated with Dr. McBride's practice locally in Medina. His name is Dr. Enlow and he is just as nice and attentive as she is. Grandma took me in so she and he talked for about 45 minutes or so. All the while he was checking me out, letting me

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-90789142549526292442008-02-17T09:42:00.007-05:002008-02-17T12:30:51.949-05:00

As you can see I fell behind in blogging. Been a long 2 weeks as I caught a virus going around the schools/daycare and have been on antibiotics and I am finally like myself again! :-)To catch everyone up, grandma is doing excersises with me to keep my ligaments and tendons loose in my legs. I will share the video of Rita (my physical therapist) teaching her how to do them. Rita and grandma also

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-82563117343978067842008-02-03T20:18:00.000-05:002008-02-04T05:57:08.890-05:00

Hi everybody!Well another week has gone by and boy were we busy! I went to the neurologist for my follow-up visit to see how I am doing on the Keppra and if my seizures have been under control. And they have! As of late I have been a bit agitated and not quite myself. I have also been pushing my luck a bit by throwing things far more than usual. And I was doing really good about this before,

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-78288379489912143842008-01-26T20:44:00.002-05:002008-01-26T21:35:50.940-05:00

Hi everybody! Thought I would share my week with you. I am finally feeling better and seem to be adjusting to the Keppra. And no seizures have been seen lately. I go to see the neurologist on Tuesday for a follow up so I will let you know more after my visit.This past week Tori and I got our report cards from our schools. We both did AWESOME! One would never know by our grades that we have had

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-52625433556485992232008-01-23T20:52:00.000-05:002008-01-24T06:10:56.690-05:00

Well folks, I am finally feeling more like myself the past couple of days. Giggling and laughing and definitely a bit more sturdy on my feet. Woo hoo! Grandma is finally relaxing a bit for the first time since this whole ordeal began on January 2nd. I know my daddy is happy to see the worrisome look leave her face. He kept telling her to not let my reaction to the Keppra get her down and he even

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-43730819085414493082008-01-21T22:37:00.000-05:002008-01-22T05:54:50.206-05:00

I promised to keep everyone current on the Keppra medication so here ya go! I am dragging myself along day to day fighting to keep awake and on my feet. I get so groggy that it is tough to make it through my mealtimes right now and lately the physical therapists in making notes regarding my not being myself and doing things I once did with ease. So my family is not the only one seeing the changes

Donnanoreply@blogger.com2tag:blogger.com,1999:blog-5073161294016733138.post-28116517467321406802008-01-20T14:52:00.000-05:002008-01-20T15:04:46.935-05:00

Well...I thought is was high time you all got a glimpse of the voice behind Miss Emma. By now you have all figured out how active a role my grandma plays in my daily life. She is the one talking to all of you and learning all the in's and out's of Angelman Syndrome so that her and Daddy are ahead of the game when it comes to me and what to expect next. Check out this short video of us and

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-27305849680668913122008-01-18T20:38:00.000-05:002008-01-18T21:35:06.123-05:00

Hi everyone! I am still trying to get use to life on seizure medication. It has definitely been an adjustment for all of us. Grandma has been chatting with lots of parents on the Angelman Listserv and getting lots of support from all the other Angel families in regards to all the changes I am having with this new medication. And my Daddy has been chatting with my neurologist too just to keep her

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-75020529638063448932008-01-11T20:07:00.000-05:002008-01-17T21:14:29.504-05:00

Hi Everybody! Well its been a bit of a rocky start for 2008 so far. Not as rough as some of my angel friends, but rough enough to rock my Grandma's world a bit.You see, on January 2nd, I got to take a ride in an ambulance. Yep! I guess being an angel is going to have its ups and downs. What was once a possibility is now a fact. It appears that what others thought about me having seizure like

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-83900978113165494742007-12-30T00:24:00.000-05:002007-12-30T21:03:36.887-05:00

When they least expected it, I gave my entire family the Angels of 2008 Calendar. They all loved them! xoxo

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-5086561571266025962007-12-26T21:19:00.000-05:002007-12-27T19:12:22.812-05:00

Great Grandpa helped me get my new Minnie Mouse out of the box. Isn't he just wonderful? :-) As you can see it was pretty hectic at grandma's that night. Lots of people talking and moving about. Me, I was content to just sit there opening my gifts and taking it all in. I was an absolute angel all evening!

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-73043301129674200942007-12-26T20:44:00.000-05:002007-12-27T19:11:14.729-05:00

Gee whiz! Santa was too good to me and Tori...we got so many wonderful gifts. I got many sensory toys from family members, baby dolls galore, daddy got me a princess inflatable bed (I love it) to play in, symphony tubby toys, v-tech wizard and v-tech story books and a new battery operated toothbrush too! I like brushing my teeth much better now! Hee-hee.I am trying to share a short video of me

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-30347635284987514532007-12-23T23:39:00.001-05:002007-12-24T08:25:02.949-05:00

May you all have the Merriest of Christmas's this year, surrounded by lots of loved ones and friends.Tori and I are officially counting down the hours till Santa arrives at our house. We have our cookies and milk ready to put out for Santa and we are going to leave a carrot for Rudoloph too!I bet I will be the first one up as usual, but something tells me my big sister Tori won't be far behind. (

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-6712908409029015692007-12-22T23:10:00.000-05:002007-12-22T23:19:43.064-05:00

Just a quick note to tell everybody that Christmas has begun for us! Yippee! We began visiting family today and I got all kinds of fun stuff. A baby doll that lights up and toys that make lots of noise. Tori of course got lots of my little pony stuff which made her very happy. Daddy is still shaking his head wondering where he is going to put all our new toys? Especially mine since he limits how

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-67540677598717861022007-12-19T18:18:00.000-05:002007-12-19T19:09:45.596-05:00

Well folks, big update. I am not deletion +, but actually UBE3A. Poor daddy was so overwhelmed with the genetic specialists phone call at work yesterday that he got a wee bit confused. But he has it all straight now as I was sick yesterday afternoon and had to visit my pediatrician today.While the pediatrician was making sure I did not have an infection because of my high fever last evening Daddy

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-90551926371080217982007-12-18T21:33:00.000-05:002007-12-18T21:41:29.149-05:00

Hi everyone. Just a quick note to let you all know Daddy received the phone call today and I AM AN ANGEL!If daddy understood what the doctor tried to explain, I am deletion +. He was a bit taken back by the phone call at work today but that is how he recalls the genetic specialist explaining things to him. I guess paperwork is coming in the mail too just to confirm everything in writing.So no

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-59644774346258346472007-12-16T01:46:00.000-05:002007-12-16T01:59:31.414-05:00

Tori & Grandma made an "angel proofed" tree this year! Yip, its all stuffed snowman heads so I can't get hurt playing with them. No hooks to fret about either. Tori was so pleased with herself. And at my house she made Daddy put an angel on top our tree in celebration of Angelman Syndrome and me. Is she not the coolest big sister?I am gonna have daddy get a picture of our tree to grandma so you

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-32846861026504934102007-12-07T22:41:00.000-05:002007-12-16T11:46:53.966-05:00

Well another week has come and gone. My how time flys when I am having fun. Did you hear, I have been sleeping all night? Yip! My daddy awoke to his alarm clock for the very first time since I was born. He said he heard it go off and ran down the hall to my room to make sure I was alright and found me still sleeping. Then he had to wake me up for daycare! :-)First they say I don't sleep enough,

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-20528458980402662152007-12-02T00:11:00.000-05:002007-12-15T23:53:41.105-05:00

Hi everybody! Well its been a rough week so Daddy & Grandma decided we were all due for a fun day out. They took both of us to the hair salon for new "hairdo's" and we both got pampered and then went for pictures. Take a look! We are a couple of cutie pies...at least according to everyone watching our photo shoot.We did a wee bit of shopping as Tori needed candy canes and silly socks for school

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-31164856422248346242007-11-27T21:55:00.001-05:002007-11-27T22:07:33.921-05:00

Daddy got a letter approving further testing for me to try to confirm my clinical diagnosis! I am going Friday. Maybe we will once and for all get the answers we have been waiting for. And a wee bit of help for my daddy with the extra little things I need day to day once my diagnosis is confirmed. I know I am an angel and so does my family. But sometimes in life we just have to walk that extra

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-84620154204162058402007-11-25T01:32:00.000-05:002007-11-25T12:54:32.878-05:00

Grandma and Uncle Jimmy tried to add music to my blog page and in the process Grandma got the bright idea to change my template too. Bad move!!! They lost over half my posts and pictures and we never thought we would find the original again. Luckily she found it tonight (or should I say this morning?) and we are back on track. ."Too funny how adults always come up with such silly ideas, isn't it?

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-60659920963696592002007-11-22T08:06:00.000-05:002007-11-22T08:22:37.435-05:00

Today is turkey day and I am going to my great grandparents house! See daddy has a grandma too just like me and Tori. I will visit and play with my cousins for a bit, then I have to visit mommy for a few hours too for the holiday. Just want to wish everyone a happy and safe holiday from me to you. Angel hugs to all.

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-47329335886689357422007-11-20T21:55:00.000-05:002007-11-27T21:21:49.107-05:00

Just a quick note to keep everyone up to date. Grandma joined the Angelman Syndrome Foundation after joining the listserv a few months ago! Wow, what great things were inside that packet for daddy and me. She also got a bit crazy and ordered 20 of the new 2008 Angel Calendars from Erin & Rob, Maggie's parents. I hope my family loves them as much as she does cause I think they are all getting one.

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-49926714016453767492007-11-18T21:27:00.001-05:002007-11-27T21:31:03.178-05:00

Well it wasn't an exciting week but you know me I make the most out of life. Been battling a cold this week and the usual constipation problem. Makes for tough sleeping when I don't feel good, but I am not complaining. I appear to be luckier then most angels as I am still seizure free for now unlike many of my other angel friends. Daddy spoke to the genetic specialist and I guess my first set of

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-14158660468982017382007-11-11T22:02:00.001-05:002007-12-15T23:49:24.063-05:00

Saturday I went to my cousin Olivia's birthday party with Daddy and my big sister Tori. I was a bit taken by so many people in one house. Who would have ever thought so many would fit in one place as they did that day that day.I saw Grandma and Papa, my Great Grandpa and Great Grandma, aunts and uncles and lots of family and friends. My newest cousin Abigail was there of course and being her

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-25365338636998822592007-11-03T21:59:00.000-04:002007-11-03T22:18:06.784-04:00

Well Tori went to grandma and papa's house this weekend so I had daddy all to myself. Boy did we have fun. Daddy and I went out to breakfast at Bakers Square, then shopping. Daddy said I was such a good girl in the restaurant. I love going out to eat in case you did not know that. I love watching all the people and smiling at everyone. Its all most as much fun as eating! I am waiting for daddy to

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-73905100294248458412007-10-28T22:56:00.000-04:002007-12-15T18:29:09.785-05:00

Just announced: Well-known Actor Colin Farrell's son also has Angelman SyndromeYesterday I was forwarded an article that announced that Colin Farrell has a son with Angelman Syndrome, the same disorder my son has. Wow. Finally someone well-known that maybe can shed some light on AS.I belong to an AS listserv. I don't go on it very often now, because I rarely have time with the kids and with my

Donnanoreply@blogger.com0tag:blogger.com,1999:blog-5073161294016733138.post-3903396410417158862007-10-28T13:29:00.000-04:002007-11-26T06:30:00.513-05:00

I was born in 2003 and my family says it was a difficult situation, but does not wish to get into too many details with me so I will tell you what I know so far. I spent the first week following my birth in NICU and Akron Children's Hospital where they took exceptional care of me. Then off to home I went to be with my family.Grandma still speaks of how tiny and fragile I was. Not sure I know what

Donnanoreply@blogger.com1tag:blogger.com,1999:blog-5073161294016733138.post-90439829732952591302007-10-28T00:10:00.000-04:002007-10-28T14:17:53.148-04:00

Well today grandma decided to start my own blog page......Anyone know what that means?I am going to have to talk to daddy about this. Maybe he can explain what blogging is? If he can't I know my big sister Tori can. She is 5 1/2 years old and goes to kindergarten so she knows everything. Just ask her!I bet she will know what grandma is up to. I will let you know what I find out tomorrow. In the

Donnanoreply@blogger.com1